"He will cover you with his feathers,
and under his wings you will find refuge; his faithfulness will be your shield and rampart." Psalm 91:4
I love, love, love this Bible verse. It's my hiding place. God will cover me with His feathers; and I can rest, hide, get away from it all, and be comforted under His "wings."
Picture this verse and my interpretation in your head, if you will. How amazing does this make you feel?!
I hope that this verse will be of comfort for you as it is for me.
xoxo
Friday, April 27, 2012
Wednesday, April 25, 2012
My Diagnoses (as of 4-25-12) ;)
- Gastroparesis
- Autonomic Neuropathy (which has caused me to lose (surgically) my gallbladder, appendix, uterus, and colon; and is currently affecting my bladder and adrenal glands)
- Nerve fiber damage
- Interstitial Cystitis
- Vulvodynia
- Fibromyalgia
- Rheumatoid Arthritis
- POTS Syndrome
- Adrenal insufficiency
- PCOS
- Migraines (the cause shows up on an MRI)
- Survivor of two DVTs & Pulmonary Embolism
- Only 60% blood flow in my legs
- Rare disease that affects your organs, yet to receive an official medical name (4th patient diagnosed with this at the Mayo Clinic)
...I feel like I'm forgetting something. If I did forget something, I'll come back and add it to the list. (You have to laugh at life when you have so many diagnoses that you start to forget them all! ;)
- Autonomic Neuropathy (which has caused me to lose (surgically) my gallbladder, appendix, uterus, and colon; and is currently affecting my bladder and adrenal glands)
- Nerve fiber damage
- Interstitial Cystitis
- Vulvodynia
- Fibromyalgia
- Rheumatoid Arthritis
- POTS Syndrome
- Adrenal insufficiency
- PCOS
- Migraines (the cause shows up on an MRI)
- Survivor of two DVTs & Pulmonary Embolism
- Only 60% blood flow in my legs
- Rare disease that affects your organs, yet to receive an official medical name (4th patient diagnosed with this at the Mayo Clinic)
...I feel like I'm forgetting something. If I did forget something, I'll come back and add it to the list. (You have to laugh at life when you have so many diagnoses that you start to forget them all! ;)
Monday, April 16, 2012
My Birthday Wish
I think back to when I was 15 years old. The tests that doctors now use to diagnose gastroparesis were considered "experimental" at the Mayo Clinic. I had to sign waivers to have these tests run back then.
I think back to just one year ago...I was in so much body pain. I was embarrassed to tell this to my doctors. They were already treating me for severe bladder pain, and now I was going to tell them that my entire body hurt just as badly? Would they think I was crazy? Even worse, would they think I was just a "pill popper?"
Luckily for me, they were very understanding, and told me I had a diagnosis called fibromyalgia. (What in the world was fibromyalgia? I had never heard of it.) To this very day, I'm still blown away that as many people who suffer from fibromyalgia, I had never once even heard of it.
Just last week I had another doctor's appointment. Guess what was taped to the window at the front desk? A new article about fibromyalgia. An article that explained its symptoms, and stated that most people are hesitant about telling their doctor if they have this wide spread body pain. That there is a name and treatment for this pain, and it's nothing to be ashamed of.
If only that article had been posted in my doctor's office window this time last year!
But, here's the good thing: There is always hope! If you have an illness right now; and it isn't being diagnosed, it's not well known, or there isn't treatment for it; {good!} chances are that in time, there will be a diagnosis. There will be knowledge to the general public about more and more illnesses. And there will be new treatments!
Today is my birthday, and one thing I've learned over the years in my life is that all things will come in their due season.
My wish today for you and for me: that we will never lose hope of the good things to come! Look back over your life (as I just did in this blog) - think about how certain things came to pass. The things we are longing to pass right now will come, too!
"God proves to be good to the man who passionately waits, to the woman who diligently seeks. It's a good thing to quietly hope, quietly hope for help from God." Lamentations 3:25, MSG
I think back to just one year ago...I was in so much body pain. I was embarrassed to tell this to my doctors. They were already treating me for severe bladder pain, and now I was going to tell them that my entire body hurt just as badly? Would they think I was crazy? Even worse, would they think I was just a "pill popper?"
Luckily for me, they were very understanding, and told me I had a diagnosis called fibromyalgia. (What in the world was fibromyalgia? I had never heard of it.) To this very day, I'm still blown away that as many people who suffer from fibromyalgia, I had never once even heard of it.
Just last week I had another doctor's appointment. Guess what was taped to the window at the front desk? A new article about fibromyalgia. An article that explained its symptoms, and stated that most people are hesitant about telling their doctor if they have this wide spread body pain. That there is a name and treatment for this pain, and it's nothing to be ashamed of.
If only that article had been posted in my doctor's office window this time last year!
But, here's the good thing: There is always hope! If you have an illness right now; and it isn't being diagnosed, it's not well known, or there isn't treatment for it; {good!} chances are that in time, there will be a diagnosis. There will be knowledge to the general public about more and more illnesses. And there will be new treatments!
Today is my birthday, and one thing I've learned over the years in my life is that all things will come in their due season.
My wish today for you and for me: that we will never lose hope of the good things to come! Look back over your life (as I just did in this blog) - think about how certain things came to pass. The things we are longing to pass right now will come, too!
"God proves to be good to the man who passionately waits, to the woman who diligently seeks. It's a good thing to quietly hope, quietly hope for help from God." Lamentations 3:25, MSG
Saturday, April 14, 2012
My First Blog
Welcome! Thank you for stopping by! :)
My first blog...do I wait to write this until I have my cute 'lil Spoonieista graphic finished and up on my blog site? Do I wait until I have all my t's crossed and my i's dotted? My current background looks 70's hippish to me - what if I decide I want another background?
Why wait. @spoonieista wasn't my first Twitter username - it was @icspoonie (referring to interstitial cystitis, as its symptoms were the worst at the time I joined Twitter). I'm glad I didn't wait for the perfect Twitter name to meet my fabulous spoonie Twitter friends. I'd be pretty lonely right now!
I have to admit...I was a tad unsure about using Twitter at first. I was also unsure about limiting myself to spoonie friends. I wanted to meet people I could relate to, but what if hearing about their illnesses made me sad? What if it brought me down?
So I'd tweet, and step away. Tweet some more, and again step away.
Until the day I got my first direct message from @jenrobinegan. What? Somebody is paying attention to my tweets? She cares about what I have to say, and we have the same interests in areas other than just being fellow spoonies? Wow. That made me feel really special! (Thanks, Jen!) ;)
Next came @lpjph. I simply adore Lisa! We have a lot in common, and I feel like a cyber "auntie" to her precious Yorkie, Tori. (I, too, am a HUGE animal lover with 3 dogs and 2 cats of my own!)
Many precious friendships developed after I met Lisa.
Later on, @julianna12369 tweeted me, and I followed her back. Julie tweets it like it is, and I love that about her! Then she tweeted links to blogs that she wrote, and I was just like, "wow." I want to write, too! If she encouraged me by her writings, maybe I could encourage others by my writing, too!
So here I am!
Thank you, @bydls for creating the "Spoonie" Theory and giving those of us living with a chronic illness(es) a place to belong...a place to connect...a place to EXIST!
I will share about my illnesses in another blog. They are many, and I don't want viewers to see my first blog and run away due to it being too long! ;) Also, many of my fellow Twitter friends know I am a patient at the Mayo Clinic and have asked me to share information. That is coming soon, too!
So, what do you say? Let's get this blogging started!
My first blog...do I wait to write this until I have my cute 'lil Spoonieista graphic finished and up on my blog site? Do I wait until I have all my t's crossed and my i's dotted? My current background looks 70's hippish to me - what if I decide I want another background?
Why wait. @spoonieista wasn't my first Twitter username - it was @icspoonie (referring to interstitial cystitis, as its symptoms were the worst at the time I joined Twitter). I'm glad I didn't wait for the perfect Twitter name to meet my fabulous spoonie Twitter friends. I'd be pretty lonely right now!
I have to admit...I was a tad unsure about using Twitter at first. I was also unsure about limiting myself to spoonie friends. I wanted to meet people I could relate to, but what if hearing about their illnesses made me sad? What if it brought me down?
So I'd tweet, and step away. Tweet some more, and again step away.
Until the day I got my first direct message from @jenrobinegan. What? Somebody is paying attention to my tweets? She cares about what I have to say, and we have the same interests in areas other than just being fellow spoonies? Wow. That made me feel really special! (Thanks, Jen!) ;)
Next came @lpjph. I simply adore Lisa! We have a lot in common, and I feel like a cyber "auntie" to her precious Yorkie, Tori. (I, too, am a HUGE animal lover with 3 dogs and 2 cats of my own!)
Many precious friendships developed after I met Lisa.
Later on, @julianna12369 tweeted me, and I followed her back. Julie tweets it like it is, and I love that about her! Then she tweeted links to blogs that she wrote, and I was just like, "wow." I want to write, too! If she encouraged me by her writings, maybe I could encourage others by my writing, too!
So here I am!
Thank you, @bydls for creating the "Spoonie" Theory and giving those of us living with a chronic illness(es) a place to belong...a place to connect...a place to EXIST!
I will share about my illnesses in another blog. They are many, and I don't want viewers to see my first blog and run away due to it being too long! ;) Also, many of my fellow Twitter friends know I am a patient at the Mayo Clinic and have asked me to share information. That is coming soon, too!
So, what do you say? Let's get this blogging started!
Subscribe to:
Posts (Atom)